Declining Primary Care Engagement Among Younger Cancer Survivors Raises Concerns

June 29, 2025
Declining Primary Care Engagement Among Younger Cancer Survivors Raises Concerns

A recent study published in the Journal of Clinical Oncology Practice reveals alarming trends regarding primary care engagement among cancer survivors. The research indicates that fewer than half of cancer survivors, particularly those diagnosed at younger ages, are visiting primary care clinicians during the critical years following their diagnosis. This trend raises significant concerns about potential long-term health implications for this population.

The study, led by Dr. Sarah Birken, Associate Professor at Wake Forest University School of Medicine, analyzed data from 516 cancer survivors treated at the Wake Forest Baptist Comprehensive Cancer Center in Winston-Salem, North Carolina. The findings show that only 43% of participants sought care from primary care providers in the fifth to seventh years post-diagnosis. Dr. Birken emphasized the importance of ongoing primary care, stating, "Primary care providers' engagement with cancer survivors is viewed as really important, not just for detection of a recurrence or a new cancer but to manage chronic diseases that are not cancer-related, like diabetes, and diseases caused or complicated by cancer treatment, like cardiovascular disease."

This study adds to previous research indicating that cancer survivors experience improved health outcomes when primary care clinicians are actively involved in their long-term care. Notably, the study found that the likelihood of engaging with a primary care clinician increased by 36% for every decade older a patient was at the time of diagnosis, highlighting a concerning trend for younger survivors.

Dr. Kevin Oeffinger, Professor at Duke University School of Medicine and founding director of the Duke Cancer Institute Center for Onco-Primary Care, expressed surprise at the findings. He stated, "The study highlights the need for better collaboration between primary care providers and oncologists." This sentiment echoes a 2005 report by the Institute of Medicine, which recommended that clinicians coordinating oncology treatment provide patients with a survivorship care plan. Despite two decades of advocacy, there remains a lack of improvement in the transition from oncology to primary care.

The study's implications extend beyond individual patient care. Dr. Birken noted that younger patients might be less engaged in healthcare overall, which could exacerbate the declining trend of primary care visits among cancer survivors. She stated, "Younger people tend to be less engaged in healthcare; after so many oncology visits following a cancer diagnosis, primary care may feel like yet another unwanted provider visit."

As the landscape of cancer diagnoses shifts towards younger demographics, the need for effective strategies to enhance primary care engagement becomes increasingly urgent. The ongoing disconnect between oncologists and primary care providers presents challenges in ensuring comprehensive care for cancer survivors. To address this issue, the study's authors advocate for increased collaboration and communication between oncology teams and primary care practitioners.

In conclusion, the trends highlighted in this study underscore the importance of fostering robust partnerships between cancer treatment providers and primary care clinicians. With younger cancer patients at risk of disconnecting from necessary follow-up care, stakeholders in the healthcare system must prioritize strategies that promote sustained engagement in primary care to mitigate potential long-term health consequences. The future of cancer survivorship may depend on the successful integration of comprehensive care approaches that encompass both oncology and primary care services.

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cancer survivorsprimary careoncologyhealthcare engagementlong-term carechronic diseasesyounger adultsbreast cancercolorectal canceruterine cancerWake Forest UniversityDuke Universityhealth outcomessurvivorship careInstitute of Medicineoncologistprimary care physicianpatient carehealthcare collaborationhealth disparitiescancer treatmenthealthcare accesscancer diagnosishealthcare policyoncology follow-upNorth Carolinahealthcare providersmedical researchchronic illness managementpublic health

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